Save Sight Now: Turning a Family’s Journey into Hope for Usher Syndrome Research with Rosalyn Porcano (Episode #170)

In this inspiring episode of Vision Beyond Sight, Dr. Lynn Hellerstein talks with Rosalyn Porcano, co-founder and Chief Development Officer of Save Sight Now Foundation, mother, and rare-disease advocate. After her daughter was diagnosed with Usher syndrome type 1B (USH1B), Rosalyn and her husband, Justin, turned their family’s challenges into a mission to accelerate research and develop treatments. Despite having no medical background, they founded Save Sight Now to remove research roadblocks and fund promising studies, bringing hope to thousands of children and families affected by this rare disease. Rosalyn shares how her daughter’s diagnosis transformed their lives and why open communication and empowerment are essential as children navigate their disabilities. With promising research ready for funding, Save Sight Now aims to raise $1 million this year for USH1B research. Join their mission at the 7th Gift of Vision Gala on November 5, 2026, in Mill Valley, California, or support their work by donating and sharing their story. Visit www.savesightnow.org to learn more and help bring hope to children and families affected by USH1B. Dr. Lynn Hellerstein, Developmental Optometrist, co-owner of Hellerstein & Brenner Vision Center, P.C., award-winning author and international speaker, holds powerful and inspiring conversations with her guests in the areas of health, wellness, education, sports and psychology. They share their inspirational stories of healing and transformation through their vision expansion. Vision Beyond Sight Podcast will help you see with clarity, gain courage and confidence. Welcome to Vision Beyond Sight! Also available on Apple Podcasts, iTunes, Google Podcasts, Spotify, iHeart Radio, Audible and Stitcher.